Repository details

PAIN repository

Name of repository
PAIN repository
Additional name(s)
  • Pain and Interoception Imaging Network Repository
Repository URL
https://www.painrepository.org/repositories/
Subject(s)
Description
The PAIN Repository is a recently funded NIH initiative, which has two components: an archive for already collected imaging data (Archived Repository), and a repository for structural and functional brain images and metadata acquired prospectively using standardized acquisition parameters (Standardized Repository) in healthy control subjects and patients with different types of chronic pain. The PAIN Repository provides the infrastructure for storage of standardized resting state functional, diffusion tensor imaging and structural brain imaging data and associated biological, physiological and behavioral metadata from multiple scanning sites, and provides tools to facilitate analysis of the resulting comprehensive data sets.
Contact
Content type(s)
Keyword(s)
Persistent identifier(s) of the repository
  • FAIRsharing_doi:10.25504/FAIRsharing.9fmyc7
Repository type(s)
  • disciplinary
Mission statement for designated community
https://www.painrepository.org/repositories/about/
Research data repository language(s)
  • English
Data and/or service provider
  • data provider
Institution name
MAPP Research Network
Additional name(s)
  • Multidisciplinary Approaches to Pelvic Pain Network
Country
United States
Type(s) of responsibility
  • sponsoring
Type of institution
non-profit
Institution name
National Instititutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases
Additional name(s)
  • NIDDK
Identifier(s)
  • ROR:00adh9b73
  • RRID:SCR_012895
Contact(s)
Country
United States
Type(s) of responsibility
  • funding
Type of institution
non-profit
Start date of responsibility
2013
Institution name
National Institutes of Health
Additional name(s)
  • NIH
Identifier(s)
  • ROR:01cwqze88
  • RRID:SCR_011417
Contact(s)
Country
United States
Type(s) of responsibility
  • funding
Type of institution
non-profit
Start date of responsibility
2013
Institution name
National Institutes of Health, National Center for Complementary and Alternative Medicine
Additional name(s)
  • NCCAM
Identifier(s)
  • RRID:SCR_011405
Contact(s)
Country
United States
Type(s) of responsibility
  • funding
Type of institution
non-profit
Start date of responsibility
2013
Institution name
National Institutes of Health, National Institute on Drug Abuse
Additional name(s)
  • NIDA
Identifier(s)
  • ROR:00fq5cm18
  • RRID:SCR_011440
Contact(s)
Country
United States
Type(s) of responsibility
  • funding
Type of institution
non-profit
Start date of responsibility
2013
Institution name
University of California, Department of Medicine, Gail and Gerald Oppenheimer Family Center for Neurobiology of Stress
Additional name(s)
  • UCLA OCNS
Contact(s)
Country
United States
Type(s) of responsibility
  • technical
  • general
Type of institution
non-profit
Start date of responsibility
2013

Policies (2)

Policy Name
Membership Agreements
Policy Name
PAIN Repository Policies

Database access

Type of access to research data repository
restricted
Database access restriction type
  • other

Data access (2)

Type of access to data
restricted
Data access restriction type(s)
  • other
  • institutional membership
  • registration
Type of access to data
embargoed

Data licenses (2)

DataLicense
other
DataLicense
other

Data upload (1)

Type of data upload
restricted
Data upload restriction type(s)
  • other

Data upload license (1)

Data upload license name
Confidentiality and Subject Protection
Name of the repository software
  • unknown
Data citation guideline
https://www.painrepository.org/repositories/about/faq/
Enhanced Publication
yes
Quality management
yes

Remarks

Remarks
Although initially PAIN Repository data will be reserved for contributing members it is planned that the repository will be opened for wider access to all pain investigators after 3 years. Full access to qualified users will include acceptance of a Data Use Agreement and the submission of an online application form (including the investigator’s institutional affiliation and he proposed research to be conducted using PAIN data). Applications for PAIN data are reviewed by the PAIN Data Sharing and Publications Committee (PDSPC) to ensure investigator affiliation with a scientific or educational institution and on the basis of the proposed research. Incomplete applications or those without a clear research focus will not receive approval.
Entry date
2016-01-21
Last update
2023-11-08
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Cite this re3data.org record:

re3data.org: PAIN repository; editing status 2023-11-08; re3data.org - Registry of Research Data Repositories. http://doi.org/10.17616/R3HS71 last accessed: 2024-04-18