Repository details

Cancer in Young People in Canada

Name of repository
Cancer in Young People in Canada
Additional name(s)
  • CYP-C
  • CCJC
  • Cancer Chez les Jeunes au Canada
Repository URL
https://www.c17.ca/committees/CYP-C
Subject(s)
Description
The Cancer in Young People in Canada (CYP-C) surveillance program collects in-depth data concerning risk factors, health outcomes, quality and accessibility of care, and late effects among children and youth with cancer. CYP-C represents a collaboration involving the C17 Council, Canadian Partnerships Against Cancer (CPAC), Public Health Agency of Canada (PHAC), provincial and territorial cancer registries, Statistics Canada and non-governmental organizations.
Contact
  • Randy.Barber@c17.ca
Content type(s)
Keyword(s)
Repository type(s)
  • disciplinary
Mission statement for designated community
https://www.canada.ca/en/public-health/services/chronic-diseases/cancer/cancer-young-people-canada-program.html
Research data repository language(s)
  • English
Data and/or service provider
  • data provider
Institution name
C17-Council
Identifier(s)
  • ROR:00ht10937
Contact(s)
Country
Canada
Type(s) of responsibility
  • technical
  • funding
  • general
Type of institution
non-profit
Institution name
Canadian Partnership Against Cancer Corporation
Additional name(s)
  • Partenariat canadien contre le cancer
Identifier(s)
  • ROR:Canadian Partnership Against Cancer Corporation
Contact(s)
Country
Canada
Type(s) of responsibility
  • general
  • funding
Type of institution
non-profit
Institution name
Government of Canada, Public Health Agency of Canada
Additional name(s)
  • Gouvernement du Canada, Agence de la santé publique du Canada
  • PHAC
Identifier(s)
  • ROR:023xf2a37
Country
Canada
Type(s) of responsibility
  • funding
  • general
Type of institution
non-profit

Policies (3)

Policy Name
Terms and conditions Government of Canada
Policy Name
CYP-C Data Use Applications
Policy Name
CYP-C Data Use and Publication Guidelines

Database access

Type of access to research data repository
open

Data access (1)

Type of access to data
restricted
Data access restriction type(s)
  • other

Data licenses (1)

DataLicense
other

Data upload (1)

Type of data upload
restricted
Data upload restriction type(s)
  • other
Persistent identifier system(s)
  • none
Name of the repository software
  • unknown
Data citation guideline
https://www.c17.ca/application/files/8216/2006/0831/CYP-C_Data_Use_and_Publication_Guidelines_Nov2019_final_v2.pdf
Enhanced Publication
unknown
Quality management
yes

Remarks

Remarks
partners: https://c17.ca/partners/our-partners
Entry date
2019-01-17
Last update
2024-01-08
Back to search
Submit a change request
Get a badge
The DataCite logo

Cite this re3data.org record:

re3data.org: Cancer in Young People in Canada; editing status 2024-01-08; re3data.org - Registry of Research Data Repositories. http://doi.org/10.17616/R31NJMGS last accessed: 2024-04-26