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Found 50 result(s)
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Human biomaterial banks (short: biobanks) are collections of human body substances (i.e. blood, DNA, urine or tissue) connected with disease specific information. This allow for research of relations between deseases and underlying (molecular) modifications and paves the way for developing target-oriented therapies ("personalized medicine"). The biobank material arises from samples taken for therapeutical or diagnostic reasons or is extracted in the context of clinical trials. An approval for usage by the patient is always needed prior to any research activities.
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The Health Atlas is an alliance of medical ontologists, medical systems biologists and clinical trials groups to design and implement a multi-functional and quality-assured atlas. It provides models, data and metadata on specific use cases from medical research projects from the partner institutions.
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BExIS is the online data repository and information system of the Biodiversity Exploratories Project (BE). The BE is a German network of biodiversity related working groups from areas such as vegetation and soil science, zoology and forestry. Up to three years after data acquisition, the data use is restricted to members of the BE. Thereafter, the data is usually public available (https://www.bexis.uni-jena.de/ddm/publicsearch/index).
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RepoMed is the institutional repository of the Hannover Medical School (MHH) and is operated by the MHH Library. It serves to publish research results and scientific publications by researchers at Hannover Medical School.
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bonndata is the institutional, FAIR-aligned and curated, cross-disciplinary research data repository for the publication of research data for all researchers at the University of Bonn. The repository is fully embedded into the University IT and Data Center and curated by the Research Data Service Center (https://www.forschungsdaten.uni-bonn.de/en). The software that bonndata is based on is the open source software Dataverse (https://dataverse.org)
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The FDZ-DZA (Forschungsdatenzentrum DZA) is a facility of the German Centre of Gerontology (Deutsches Zentrum für Altersfragen, DZA) and has received accreditation as research data center DZA by the German Data Forum (RatSWD). Its main task is to make data of the German Ageing Survey DEAS and the German Survey on Volunteering (FWS) accessible to researchers by providing user-friendly Scientific Use Files (SUF), documentation of the contents and instruments as well support for scholars using the data.
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The Research Data Centre of the Robert Koch Institute (FDZ RKI) publishes the data of population-representative health surveys in the form of public use files (PUFs).The main purpose of health surveys is to generate a maximum amount of information on the state of health and health-related behaviour of Germany's resident population while ensuring an optimum use of funds. The methodology - i.e. the sample design, the principles on operationalization and measurement, and data-collection techniques - is largely modelled on the tried-and-tested methods of empirical social research. Health interview surveys (HIS) use established survey techniques such as filling out questionnaires, computer-assisted telephone interviews (CATI), computer-assisted personal interviews (CAPI), and online polling via the internet or email. The main difference compared to purely sociological surveys lies in the additional biomedical examinations, tests and medical-biochemical measurements, which generate significant added value in addition to the results of the surveys; this part is referred to internationally as the health examination survey (HES).
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The BonaRes Repository stores, manage and publishes soil and agricultural research data from research projects, agricultural long-term field experiments and soil profiles which contribute significantly to the analysis of changes of soil and soil functions over the long term. Research data are described by the metadata following the BonaRes Metadata Schema (DOI: 10.20387/bonares-5pgg-8yrp) which combines international recognized standards for the description of geospatial data (INSPIRE Directive) and research data (DataCite 4.0). Metadata includes AGROVOC keywords. Within the BonaRes Repository research data is provided for free reuse under the CC License and can be discovered by advanced text and map search via a number of criteria.
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Movebank is an online platform that helps researchers and wildlife managers worldwide manage, share, analyze and archive animal movement data. Movebank's database is designed for locations of individual animals over time, commonly referred to as tracking data, and measurements collected by other sensors attached to animals, as well as information about related animals, tags and deployments. The platform supports public and controlled-access sharing, and offers services for working with data from initial collection through publication, discovery and re-use.
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OpARA (Open Access Repository and Archive) is the repository for digital research data of the TU Dresden (TUD) and the TU Bergakademie Freiberg (TUBAF). It offers researchers the possibility of archiving their digital research data and optionally making it accessible to third parties under an Open Access license.
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Health education and health promotion are important elements of the health system in Germany. The Federal Centre for Health Education (BZgA) has been pursuing the goal of preventing health risks and encouraging health-promoting lifestyles since its establishment in 1967. In addition, the understanding of health and prevention is changing. Against this backdrop, health education is - as a constant communication process - dedicated to the goal of enabling self-responsible action in relation to health. The data sets can be requested from GESIS via the data archive for social sciences (DAS): https://www.gesis.org/institut/abteilungen/datenarchiv-fuer-sozialwissenschaften
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The Centre for Clinical Trials Cologne (Köln ZKS) aims to support all processes of clinical trials and the quality of patient-oriented clinical research in an academic environment. It supports doctors of University Hospital of Cologne, other clinics, study groups and professional associations in the design and conduct of clinical trials. For the pharmaceutical industry and contract research organizations, the ZKS Köln is a clinic near partner for medical research projects.
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The Media Repository is a web-based digital asset management system to store, organize and share digital media files. Not only images and documents are directly supported – audio and video content is supported as well. The data can be re-used in other systems. The system manages a variety of file formats and metadata schemes. It stores and organizes media data and helps to manage workflows with them. Public web presentations are possible as well as collaborative work in restricted groups. The Media Repository helps both small teams and larger research projects in the management of media assets and their long-term storage.
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The database MORPHYLL contains quantitative and qualitative morphometric data of fossil angiosperm leaves from the Paleogene. The data are compiled from different fossil sites housed in various European Natural History Museums.
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Since 2004, the Leibniz Institute for Prevention Research and Epidemiology – BIPS has been working on the establishment and maintenance of the project-based German Pharmacoepidemiological Research Database (short GePaRD). GePaRD is based on claims data from statutory health insurance (SHI) providers and currently includes information on about 20 million persons who have been insured with one of the participating providers since 2004. Per data year, there is information on approximately 17% of the general population from all geographical regions of Germany.
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The University of Göttingen preserves one of the most important collections of scientific collections. At more than 30 distributed locations on the Göttingen Campus, the collections reflect its disciplinary diversity: the spectrum ranges from archeology to zoology, from astrophysical instruments to the living cell cultures of the algae collection. Historical legacy dating back to the Age of Enlightenment: The founding holdings of the Royal Academic Museum of Georgia Augusta are largely preserved. Research and teaching to date access to the collection objects and increase the stocks. Get to know our collections in this portal, which have been used to create knowledge for three centuries.
The Human Mortality Database (HMD) was created to provide detailed mortality and population data to researchers, students, journalists, policy analysts, and others interested in the history of human longevity. The Human Mortality Database (HMD) contains original calculations of death rates and life tables for national populations (countries or areas), as well as the input data used in constructing those tables. The input data consist of death counts from vital statistics, plus census counts, birth counts, and population estimates from various sources.
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The German Central Health Study Hub is a platform that serves two different kinds of users. First, it allows scientists and data holding organizations (data producers) to publish their project characteristics, documents and data related to their research endeavour in a FAIR manner. Obviously, patient-level data cannot be shared publicly, however, metadata describing the patient-level data along with information about data access can be shared via the platform (preservation description information). The other kind of user is a scientist or researcher (data consumer) that likes to find information about past and ongoing studies and is interested in reusing existing patient-level data for their project. To summarize, the platforms connect data providers with data consumers in the domain of clinical, public health and epidemiologic health research to foster reuse. The platform aggregates and harmonizes information already entered in various public repositories such as DRKS, clinicaltrials.gov, WHO ICTRP to provide a holistic view of the German research landscape in the aforementioned research areas. In addition, data stewards actively collect available information from (public) resources such as websites that cannot be automatically integrated. The service started during the COVID-19 pandemic.
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OpenAgrar is an open access repository which publishes, stores, archives and distributes publications, publication references and research data. Its resources can be searched and used by everyone. It contains amongst others theses, reports, conference proceedings, journal articles, books, institutional documents, research datasets, videos and interviews.
STOREDB is a platform for the archiving and sharing of primary data and outputs of all kinds, including epidemiological and experimental data, from research on the effects of radiation. It also provides a directory of bioresources and databases containing information and materials that investigators are willing to share. STORE supports the creation of a radiation research commons.
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The Research Data Repository of the University of Mannheim invites all researchers and faculty of the University of Mannheim to archive their research data here in order to make it accessible through the Internet. All archived data sets receive DOIs (Digital Object Identifier) to make them accessible and citable. Using this repository is free of charge.
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The SHIP study´s main aims include the investigation of health in all its aspects and complexity involving the collection and assessment of data relevant to the prevalence and incidence of common, population-relevant diseases and their risk factors.
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KiGGS is a long-term study conducted by the Robert Koch Institute (RKI) on the health of children and adolescents in Germany. The study repeatedly supplies data, representative of the country as a whole, on the health of under 18-year-olds. In addition, the children and adolescents of the first KiGGS study are repeatedly invited, and they continue to be monitored right into their adulthood.
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With its “Blood Donor BIOBANK”, the Bavarian Red Cross (BRK) Blood Donor Service offers a unique and innovative resource for biomarker research: the world’s first blood donor based biobank. Biobanks as collections of biological material together with associated medical data open new possibilities for the development of new targeted diagnostics and therapies. The BRK Blood Donor Service maintains a unique collection of over 3 million blood samples, making it one of the largest sample collections worldwide. Every working day 2,000 new samples are added to the collection.
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The data repository of the Helmholtz Centre for Environmental Research. The Data Investigation Portal (DRP) provides the opportunity to publicly access the administered data in the Data Management Portal and search them. The presentation is here limited to metadata and non-restricted information. DRP users can thus gain an overview of the data sets and, if necessary, contact the author to gain access to the data.