Filter
Reset all

Subjects

Content Types

Countries

AID systems

API

Certificates

Data access

Data access restrictions

Database access

Database access restrictions

Database licenses

Data licenses

Data upload

Data upload restrictions

Enhanced publication

Institution responsibility type

Institution type

Keywords

Metadata standards

PID systems

Provider types

Quality management

Repository languages

Software

Syndications

Repository types

Versioning

  • * at the end of a keyword allows wildcard searches
  • " quotes can be used for searching phrases
  • + represents an AND search (default)
  • | represents an OR search
  • - represents a NOT operation
  • ( and ) implies priority
  • ~N after a word specifies the desired edit distance (fuzziness)
  • ~N after a phrase specifies the desired slop amount
Found 52 result(s)

Avon Longitudinal Study of Parents and Children

ALSPAC

Subject(s)
Content type(s)
Country
ALSPAC is a longitudinal birth cohort study which enrolled pregnant women who were resident in one of three Bristol-based health districts in the former County of Avon with an expected delivery date between 1st April 1991 and 31st December 1992. Around 14,000 pregnant women were initially recruited. Detailed information has been collected on these women, their partners and subsequent children using self-completion questionnaires, data extraction from medical notes, linkage to routine information systems and from hands-on research clinics. Additional cohorts of participants have since been enrolled in their own right including fathers, siblings, children of the children and grandparents of the children. Ethical approval for the study was obtained from the ALSPAC Ethics and Law Committee (IRB00003312) and Local Research Ethics.

B2SAFE

Subject(s)
Content type(s)
Country
B2SAFE is a robust, safe and highly available service which allows community and departmental repositories to implement data management policies on their research data across multiple administrative domains in a trustworthy manner. A solution to: provide an abstraction layer which virtualizes large-scale data resources, guard against data loss in long-term archiving and preservation, optimize access for users from different regions, bring data closer to powerful computers for compute-intensive analysis

BIH / Charité Virtual Research Environment

Berlin Institute of Health / Charité Virtual Research Environment

Subject(s)
Content type(s)
Country
The Virtual Research Environment (VRE) is an open-source data management platform that enables medical researchers to store, process and share data in compliance with the European Union (EU) General Data Protection Regulation (GDPR). The VRE addresses the present lack of digital research data infrastructures fulfilling the need for (a) data protection for sensitive data, (b) capability to process complex data such as radiologic imaging, (c) flexibility for creating own processing workflows, (d) access to high performance computing. The platform promotes FAIR data principles and reduces barriers to biomedical research and innovation. The VRE offers a web portal with graphical and command-line interfaces, segregated data zones and organizational measures for lawful data onboarding, isolated computing environments where large teams can collaboratively process sensitive data privately, analytics workbench tools for processing, analyzing, and visualizing large datasets, automated ingestion of hospital data sources, project-specific data warehouses for structured storage and retrieval, graph databases to capture and query ontology-based metadata, provenance tracking, version control, and support for automated data extraction and indexing. The VRE is based on a modular and extendable state-of-the art cloud computing framework, a RESTful API, open developer meetings, hackathons, and comprehensive documentation for users, developers, and administrators. The VRE with its concerted technical and organizational measures can be adopted by other research communities and thus facilitates the development of a co-evolving interoperable platform ecosystem with an active research community.

Born in Bradford

BiB

Subject(s)
Content type(s)
Country
Born in Bradford is one of the biggest and most important medical research studies undertaken in the UK. The project started in 2007 and is looking to answer questions about our health by tracking the lives of 13,500 babies and their families and will provide information for studies across the UK and around the world. The aim of Born in Bradford is to find out more about the causes of childhood illness by studying children from all cultures and backgrounds as their lives unfold.

Canadia Blood Services Data4Research Program

Subject(s)
Content type(s)
Country
Through its Blood4Research Program based in Vancouver, the Centre for Innovation collects blood from committed donors who have been deferred from donating blood for patient use. The collected blood is processed and provided to investigators to facilitate research that promotes advances in the fields of transfusion, cellular therapies, and transplantation medicine. Through its Cord Blood for Research Program, Canadian Blood Services’ Cord Blood Bank provides investigators with cord blood products to facilitate research that promotes advances in the fields of transfusion, cellular therapies, and transplantation medicine.​ The Cord Blood for Research Program distributes cord blood products that do not meet the criteria for storage in the cord blood bank but still contain enough cells for meaningful research and for which mothers’ research consent has been obtained.

CaPSURE

Cancer of the Prostate Strategic Urologic Research Endeavor

Subject(s)
Content type(s)
Country
CaPSURE™ is a longitudinal, observational study of approximately 15,000 men with all stages of biopsy-proven prostate cancer. Patients have enrolled at 43 community urology practices, academic medical centers, and VA hospitals throughout the United States since 1995. CEASAR stands for Comparative Effectiveness Analysis of Surgery and Radiation. The ongoing goal of CEASAR is to help learn more about what prostate cancer treatments work best, for which patients, in whose hands. There are currently about 3,600 men with a prostate cancer diagnosis participating in CEASAR. Three rounds of surveys have been completed, with the first carried out in the spring of 2010. We are currently in the process of conducting our fourth survey with the same group of men in our study. This survey, our Three Year Follow-up, will occur throughout the summer of 2014.

CardiacAI Data Repository

Cardiac Analaytics and Innovation Data Repository

Subject(s)
Content type(s)
Country
The team have established the CardiacAI Data Repository that brings large amounts of Australian healthcare data together in a secure environment with strict conditions for use of these data with an appropriate level of oversight of research activities. The CardiacAI Data Repository collects de-identified EMR data about cardiovascular patients who are admitted to a group of urban and regional hospitals in NSW and links this with state-wide hospital and emergency deparment visit and mortality data and mobile-health remote monitoring data.

CARIBIC

Civil Aircraft for the Regular Investigation of the atmosphere Based on an Instrument Container

Subject(s)
Content type(s)
Country
CARIBIC is an innovative scientific project to study and monitor important chemical and physical processes in the Earth´s atmosphere. Detailed and extensive measurements are made during long distance flights. We deploy an airfreight container with automated scientific apparatus which are connected to an air and particle (aerosol) inlet underneath the aircraft. We use an Airbus A340-600 from Lufthansa since December 2004.

Clinical data repository

CDR

Subject(s)
Content type(s)
Country
The data in the U of M’s Clinical Data Repository comes from the electronic health records (EHRs) of more than 2 million patients seen at 8 hospitals and more than 40 clinics. For each patient, data is available regarding the patient's demographics (age, gender, language, etc.), medical history, problem list, allergies, immunizations, outpatient vitals, diagnoses, procedures, medications, lab tests, visit locations, providers, provider specialties, and more.

Coscine

Subject(s)
Content type(s)
Country
Coscine is a web-based RDM platform for all kind of generic research data that was developed at RWTH Aachen University. It enables the storage, management and archiving for ten years of research and metadata generated in the context of research projects. The platform also promotes cooperation across organizational boundaries, as researchers can log in either via their organization via SSO or via ORCID. To enable meaningful metadata management for all research areas, Coscine allows flexible description with metadata based on established technologies (SHACL/RDF). The platform is designed to make warm/used/active data FAIR.

Cross-National Time-Series Data Archive

CNTS Data Archive

Subject(s)
Content type(s)
Country
The Cross-National Time-Series Data Archive (CNTS) was initiated by Arthur S. Banks in 1968 with the aim of assembling, in machine readable, longitudinal format, certain of the aggregate data resources of The Statesman’s Yearbook. The CNTS offers a listing of international and national country-data facts. The dataset contains statistical information on a range of countries, with data entries ranging from 1815 to the present.

Diamond data catalogue

Diamond Light Source data catalogue

Subject(s)
Content type(s)
Country
Diamond Light Source is the UK’s national synchrotron, located at the Harwell Science and Innovation Campus in Oxfordshire. It works like a giant microscope, harnessing the power of electrons to produce bright light that scientists can use to study anything from fossils to jet engines to viruses and vaccines. ICAT allows you to browse and download archived data from instrument experiments at Diamond Light Source.

Environmental Monitoring System

EMS

Subject(s)
Content type(s)
Country
EMS is the BC Ministry of Environment's primary monitoring data repository. The system was designed to capture data covering physical/chemical and biological analyses performed on water, air, solid waste discharges and ambient monitoring sites throughout the province. It also contains related quality assurance data. Samples are collected by either ministry staff or permittees under the Environmental Management Act and then analyzed in public or private sector laboratories. The majority of such monitoring data is entered into EMS electronically via Electronic Data Transfer (EDT). EMS data is typically available in formatted hard copy reports or electronically in comma delimited (e.g., .csv) files as: Monitoring location-related data, Sample and results-related data. Direct access to EMS is restricted to ministry staff, however public access is available upon request through EMS Web Reporting.

ETH Data Archive

Subject(s)
Content type(s)
Country
ETH Data Archive is ETH Zurich's long-term preservation solution for digital information such as research data, digitised content, archival records, or images. It serves as the backbone of data curation and for most of its content, it is a “dark archive” without public access. In this capacity, the ETH Data Archive also archives the content of ETH Zurich’s Research Collection which is the primary repository for members of the university and the first point of contact for publication of data at ETH Zurich. All data that was produced in the context of research at the ETH Zurich, can be published and archived in the Research Collection. An automated connection to the ETH Data Archive in the background ensures the medium to long-term preservation of all publications and research data. Direct access to the ETH Data Archive is intended only for customers who need to deposit software source code within the framework of ETH transfer Software Registration. Open Source code packages and other content from legacy workflows can be accessed via ETH Library @ swisscovery (https://library.ethz.ch/en/).

Experimental Lakes Area

IISD - ELA

Subject(s)
Content type(s)
Country
IISD Experimental Lakes Area is one of the world’s most influential freshwater research facilities. It features a collection of 58 small lakes and their watersheds in Northwestern Ontario, Canada, as well as a facility with accommodations and laboratories for up to 60 personnel.

Fairdata IDA Research Data Storage Service

IDA Research Data Storage Service

Subject(s)
Content type(s)
Country
Fairdata IDA is a research data storage service that provides secure storage for research data. The Fairdata services are a group of nationally developed Finnish ICT services for managing research data, especially in the later phases of the research life cycle (sharing, publishing, and preserving). Development of research data management infrastructure has been identified as an important step in enabling implementation of the FAIR principles. The Fairdata services are funded by the Finnish Ministry of Education and Culture, and developed and maintained by CSC IT Center for Science. The services consist of the following service components: IDA – Research Data Storage; Etsin – Research Data Finder; Qvain – Research Dataset Metadata Tool; Metax – Metadata Warehouse; AVAA – Dynamic Data Publishing Platform and the Digital Preservation Service for Research Data (including management and packaging). The services also provide means for applying for and granting permits to use restricted access datasets. The service is offered free of charge for its users. The services are available to the research community in accordance with the applicable usage policy. Minedu offers access to research data storage service IDA to Finnish higher education institutions, state research institutes and projects funded by the Academy of Finland. Minedu may also grant separate access or storage capacity to the service. Finnish higher education institutions and research institutes may distribute IDA storage capacity to actors within the Finnish research system, within the limits of their usage shares. The service is intended for storing research data and materials related to it. The data stored in the service is available to all project users. The users mark their data to be persistently stored (“Frozen”) in the service. All project members may make the “Frozen” data and related metadata publicly accessible by using the other aforementioned Fairdata services. The data in the service is stored in Finland. IDA service stores the data stored by organisations projects continuously or until it’s transferred to digital preservation, provided that the Terms of Use are met. The owners of the data decide on the openness and usage policies for their own data. User organisations are offered support and guidance on using the service.

Forschungsdaten- und Servicezentrum der Bundesbank

Research Data and Service Centre Deutsche Bundesbank

Subject(s)
Content type(s)
Country
The RDSC provides researchers access to selected microdata from the Bundesbank's data records for independent and non-commercial scientific research projects on basis of the legal requirements. The RDSC is the mediator between the Bundesbank’s wide range of different micro data in various departments and – on the other side – researchers or analysts. In connection with this, the RDSC is responsible for the methodological improvement, the access of and the comprehensive documentation of the high-quality microdata. It also offers additional consultancy and support services to existing and prospective data users and satisfies data protection requirements. English version see: https://www.bundesbank.de/en/bundesbank/research/rdsc/research-data-and-service-centre-rdsc--869492

Forschungsdatenzentrum der Bundesagentur für Arbeit im Institut für Arbeitsmarkt und Berufsforschung

Forschungsdatenzentrum der BA im IAB

Subject(s)
Content type(s)
Country
The Research Data Centre (FDZ) of the German Federal Employment Agency (BA) at the Institute for Employment Research (IAB) is intended mainly to facilitate access to BA and IAB micro data for non-commercial empirical research using standardised and transparent access rules. The FDZ mediates between data producers and external users. We also control for compliance with data protection regulations.

Fox Insight Date Exploration Network

Fox DEN

Subject(s)
Content type(s)
Country
Fox DEN provides investigators with a tool to explore, download and apply statistical models on aggregated data collected for the Fox Insight online clinical study. The Fox Insight study collects patient-reported outcomes and genetic data from people with Parkinson's disease and their loved ones.

Growing Up Today Study

GUTS

Subject(s)
Content type(s)
Country
<<<!!!<<< The 2019-2020 Questionnaire is no longer live. >>>!!!>>>

HI HOPES

Subject(s)
Content type(s)
Country
HI HOPES aims is to provide free home based support and information without bias to every family with an infant or toddler with hearing loss. Through an early intervention framework of care, support, information and partnership in a culturally sensitive, community based manner to allow we aim to empower the family in their home environment and help the baby with a hearing loss to reach her/his full potential.

InCHIANTI

The InCHIANTI Study

Subject(s)
Content type(s)
Country
<<<!!!<<< This repository is no longer available. >>>!!!>>>

Integrated Neurodegenerative Disease Database

INDD

Subject(s)
Content type(s)
Country
The Penn Integrated Neurodegenerative Disease Database (INDD) contains data from individuals with Alzheimer's disease, Parkinson's disease, frontotemporal dementia, and amyotrophic lateral sclerosis, who have been followed in research studies at the University of Pennsylvania. The database has been periodically described in publications (https://pubmed.ncbi.nlm.nih.gov/23978324/), with updates on the website. Researchers can request biosamples as well as clinical and biomarker data. Scientists work collaboratively to analyze the Integrative Neurodegenerative Disease Database (INDD) from the Center for Neurodegenerative Disease Research (CNDR) that tracks ~11,000 patients who attended one of four neurodegenerative disease centers at Penn.

Jülich ObservatorY for Cloud Evolution - Core Facility

formerly: JOYCE

Subject(s)
Content type(s)
Country
The Jülich Observatory for Cloud Evolution (JOYCE) operates ground-based active and passive remote sensing instruments for cloud and precipitation observations. ​JOYCE is based on a long-term successful collaboration between the University of Cologne, the University of Bonn and the Research Centre Jülich. Since 2017 JOYCE is transformed into a Core Facility (JOYCE - CF) funded by the DFG (Deutsche Forschungsgemeinschaft) with the aim of high quality radar and passive microwave observations of the atmosphere. JOYCE will serve as a reference center for best practices in data acquisition, storage and distribution. JOYCE instrumentation aims to observe spatial and temporal variability of atmospheric water cycle variables.

LiceBase

Subject(s)
Content type(s)
Country
LiceBase is a database for sea lice genomics. LiceBase provides the genome annotation of the Atlantic salmon louse Lepeophtheirus salmonis, a genome browser, Blast functionality and access to related high-thoughput genomics data.