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Found 23 result(s)
The Whitehall II study was established to explore the relationship between socio-economic status, stress and cardiovascular disease. A cohort of 10,308 participants aged 35-55, of whom 3,413 were women and 6,895 men, was recruited from the British Civil Service in 1985. Since this first wave of data collection, self-completion questionnaires and clinical data have been collected from the cohort every two to five years with a high level of participation. Data collection is intended to continue until 2030.
Child Care & Early Education Research Connections promotes high quality research in child care and early education and the use of that research in policy making. Our vision is that children are well cared for and have rich learning experiences, and their families are supported and able to work. Through this Web site, we offer research and data resources for researchers, policy makers, practitioners, and others.
Country
The Canadian Institute for Health Information (CIHI) provides comparable and actionable data and information that are used to accelerate improvements in health care, health system performance and population health across Canada.
The Health and Retirement Study (HRS) is a longitudinal panel study that surveys a representative sample of more than 26,000 Americans over the age of 50 every two years. The study has collected information about income, work, assets, pension plans, health insurance, disability, physical health and functioning, cognitive functioning, genetic information and health care expenditures.
Country
The “ICSSR Data Service” is culmination of signing of Memorandum of Understanding (MoU) between Indian Council of Social Science Research (ICSSR) and Ministry of Statistics and Programme Implementation (MoSPI). The MoU provides for setting-up of “ICSSR Data Service: Social Science Data Repository” and host NSS and ASI datasets generated by MoSPI. Under the initiative, social science research institutes, NGOs, individuals and others dealing with social science research are also being approached to deposit / provide their research datasets for hosting into the repository of ICSSR Data Service. The ICSSR Data Service includes social science and statistical datasets of various national-level surveys on debt & investment, domestic tourism, enterprise survey, employment and unemployment, housing condition, household consumer expenditure, health care, etc., into its repository. ICSSR Data Service aims to facilitate data sharing, preservation, accessibility and reuse of social science research data collected from entire social science community in India & abroad. The Information and Library Network (INFLIBNET) Centre, Gandhinagar has been assigned the task of setting-up the data repository.
The National Collaborative on Childhood Obesity Research (NCCOR) brings together four of the nation's leading research funders — the Centers for Disease Control and Prevention (CDC), the National Institutes of Health (NIH), the Robert Wood Johnson Foundation (RWJF), and the U.S. Department of Agriculture (USDA) — to address the problem of childhood obesity in America. The Tools of the NCCOR are: Catalogue of Surveillance Systems, Measures Registry and Registry of Studies.
The ClinicalCodes repository aims to hold code lists for all published electronic medical record studies, irrespective of code type (e.g. Read, ICD9-10, SNOMED) and database (CPRD, QResearch, THIN etc.). Once deposited, code lists will be freely available, with no login needed to download codes.
<<<!!!<<< This repository is no longer available. >>>!!!>>> The Diabetes Study of Northern California (DISTANCE) conducts epidemiological and health services research in diabetes among a large, multiethnic cohort of patients in a large, integrated health care delivery system.
The MRC National Survey of Health and Development 1946 (NSHD) was the first ever British birth cohort study. It has collected information from birth to the current day on the health and life circumstances of five and a half thousand men and women born during a week in March 1946 throughout England, Wales, and Scotland. The study explores differences in child development by factors like social class, biological factors, health and education. Due to the length of the study it has developed into a study of ageing.
The Odum Institute Archive Dataverse contains social science data curated and archived by the Odum Institute Data Archive at the University of North Carolina at Chapel Hill. Some key collections include the primary holdings of the Louis Harris Data Center, the National Network of State Polls, and other Southern-focused public opinion data. Please note that some datasets in this collection are restricted to University of North Carolina at Chapel Hill affiliates. Access to these datasets require UNC ONYEN institutional login to the Dataverse system.
Country
More than a quarter of a million people — one in 10 NSW men and women aged over 45 — have been recruited to our 45 and Up Study, the largest ongoing study of healthy ageing in the Southern Hemisphere. The baseline information collected from all of our participants is available in the Study’s Data Book. This information, which researchers use as the basis for their analyses, contains information on key variables such as height, weight, smoking status, family history of disease and levels of physical activity. By following such a large group of people over the long term, we are developing a world-class research resource that can be used to boost our understanding of how Australians are ageing. This will answer important health and quality-of-life questions and help manage and prevent illness through improved knowledge of conditions such as cancer, heart disease, depression, obesity and diabetes.
THIN is a medical data collection scheme that collects anonymised patient data from its members through the healthcare software Vision. The UK Primary Care database contains longitudinal patient records for approximately 6% of the UK Population. The anonymised data collection, which goes back to 1994, is nationally representative of the UK population.
IBICT is providing a research data repository that takes care of long-term preservation and archiving of good practices, so that researchers can share, maintain control and get recognition for your data. The repository supports research data sharing with Quote persistent data, allowing them to be played. The Dataverse is a large open data repository of all disciplines, created by the Institute for Quantitative Social Science at Harvard University. IBICT the Dataverse repository provides a means available for free to deposit and find specific data sets stored by employees of the institutions participating in the Cariniana network.
Country
Health Data Nova Scotia (HDNS), is a data repository based in the Faculty of Medicine's, Department of Community Health and Epidemiology at Dalhousie University, focused on supporting data driven research for a healthier Nova Scotia. HDNS facilitates research and innovation in Nova Scotia by providing access to linkable administrative health data and analysis for research and health service assessment purposes in a secure, controlled environment, while respecting the privacy and confidentiality of Nova Scotians.
The FREEBIRD website aims to facilitate data sharing in the area of injury and emergency research in a timely and responsible manner. It has been launched by providing open access to anonymised data on over 30,000 injured patients (the CRASH-1 and CRASH-2 trials).
The Swiss HIV Cohort Study (SHCS), established in 1988, is a systematic longitudinal study enrolling HIV-infected individuals in Switzerland. It is a collaboration of all Swiss University Hospital infectious disease outpatient clinics, two large cantonal hospitals, all with affiliated laboratories, and with affiliated smaller hospitals and private physicians carrying for HIV patients. The Swiss Mother and Child HIV Cohort Study (MoCHiV) is integrated into the SHCS. It aims at preventing mother to child transmission and enrolls HIV-infected pregnant women and their children. The SHCS involves practically all researchers being active in patient-oriented HIV research in Switzerland. The clinics can delegate recruitment of participants and follow-up visits to other outpatient clinics or to specialized private physicians, provided that the requirements of the protocol can be entirely fulfilled and controlled. The laboratories can contract other laboratories for some of the analyses.
Arca Data is Fiocruz's official repository for archiving, publishing, disseminating, preserving and sharing digital research data produced by the Fiocruz community or in partnership with other research institutes or bodies, with the aim of promoting new research, ensuring the reproducibility or replicability of existing research and promoting an Open and Citizen Science. Its objective is to stimulate the wide circulation of scientific knowledge, strengthening the institutional commitment to Open Science and free access to health information, in addition to providing transparency and fostering collaboration between researchers, educators, academics, managers and graduate students, to the advancement of knowledge and the creation of solutions that meet the demands of society.
The Fragile Families and Child Wellbeing Study changed its name to The Future of Families and Child Wellbeing Study (FFCWS). Note that all documentation issued prior to January 2023 contains the study’s former name. Any further reference to FFCWS should kindly observe this name change. The Fragile Families & Child Wellbeing Study is following a cohort of nearly 5,000 children born in large U.S. cities between 1998 and 2000 (roughly three-quarters of whom were born to unmarried parents). We refer to unmarried parents and their children as “fragile families” to underscore that they are families and that they are at greater risk of breaking up and living in poverty than more traditional families. The core Study was originally designed to primarily address four questions of great interest to researchers and policy makers: (1) What are the conditions and capabilities of unmarried parents, especially fathers?; (2) What is the nature of the relationships between unmarried parents?; (3) How do children born into these families fare?; and (4) How do policies and environmental conditions affect families and children?
Country
MIDAS is a national research data repository. The aim of MIDAS is to collect, process, store and analyse research data and other relevant information in all fields of knowledge, enabling free, easy and convenient access to the data via the Internet. MIDAS provides services for registered and unregistered users: students, listeners, academics, researchers, scientists, research administrators, other actors of the research and studies ecosystem, and all individuals interested in research data. MIDAS consists of the MIDAS portal and MIDAS user account. The MIDAS portal is a public space accessible to anyone interested in discovering and viewing published research Data and their metadata, whereas MIDAS user account is available to registered users only. MIDAS is managed by Vilnius University.
Research data management is a general term covering how you organize, structure, store, and care for the information used or generated during a research project. The University of Oxford policy mandates the preservation of research data and records for a minimum of 3 years after publication. A place to securely hold digital research materials (data) of any sort along with documentation that helps explain what they are and how to use them (metadata). The application of consistent archiving policies, preservation techniques and discovery tools, further increases the long term availability and usefulness of the data. This is the main difference between storage and archiving of data. ORA-Data is the University of Oxford’s research data archive https://www.re3data.org/repository/r3d100011230
Historic Environment Scotland was formed in October 2015 following the merger between Historic Scotland and The Royal Commission on the Ancient and Historical Monuments of Scotland. Historic Environment Scotland is the lead public body established to investigate, care for and promote Scotland’s historic environment. We lead and enable Scotland’s first historic environment strategy Our Place in Time, which sets out how our historic environment will be managed. It ensures our historic environment is cared for, valued and enhanced, both now and for future generations.
By stimulating inspiring research and producing innovative tools, Huygens ING intends to open up old and inaccessible sources, and to understand them better. Huygens ING’s focus is on Digital Humanities, History, History of Science, and Textual Scholarship. Huygens ING pursues research in the fields of History, Literary Studies, the History of Science and Digital Humanities. Huygens ING aims to publish digital sources and data responsibly and with care. Innovative tools are made as widely available as possible. We strive to share the available knowledge at the institute with both academic peers and the wider public.