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Found 21 result(s)

Health and Medical Care Archive

HMCA

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The Health and Medical Care Archive (HMCA) is the data archive of the Robert Wood Johnson Foundation (RWJF), the largest philanthropy devoted exclusively to health and health care in the United States. Operated by the Inter-university Consortium for Political and Social Research (ICPSR) at the University of Michigan, HMCA preserves and disseminates data collected by selected research projects funded by the Foundation and facilitates secondary analyses of the data. Our goal is to increase understanding of health and health care in the United States through secondary analysis of RWJF-supported data collections

Child Care & Early Education Research Connections

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Child Care & Early Education Research Connections promotes high quality research in child care and early education and the use of that research in policy making. Our vision is that children are well cared for and have rich learning experiences, and their families are supported and able to work. Through this Web site, we offer research and data resources for researchers, policy makers, practitioners, and others.

Canadian Institute for Health Information Repository

CIHI's Repository

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The Canadian Institute for Health Information (CIHI) provides comparable and actionable data and information that are used to accelerate improvements in health care, health system performance and population health across Canada.

Agency for Healthcare Research and Quality, Data & Surveys

AHRQ data & surveys

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A collection of data at Agency for Healthcare Research and Quality (AHRQ) supporting research that helps people make more informed decisions and improves the quality of health care services. The portal contains U.S.Health Information Knowledgebase (USHIK) and Systematic Review Data Repository (SRDR) and other sources concerning cost, quality, accesibility and evaluation of healthcare and medical insurance.

The National Practitioner Data Bank

NPDB

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The National Practitioner Data Bank (NPDB), or "the Data Bank," is a confidential information clearinghouse created by Congress with the primary goals of improving health care quality, protecting the public, and reducing health care fraud and abuse in the U.S.

Manitoba Population Research Data Repository

MCHP Data Repository

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The Population Health Research Data Repository housed at MCHP is a comprehensive collection of administrative, registry, survey, and other data primarily relating to residents of Manitoba. It was developed to describe and explain patterns of health care and profiles of health and illness, facilitating inter-sectoral research in areas such as health care, education, and social services.

ICSSR Data Service: Social Science Data Repository

ICSSR Data Service: Indian Social Science Data Repository

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The “ICSSR Data Service” is culmination of signing of Memorandum of Understanding (MoU) between Indian Council of Social Science Research (ICSSR) and Ministry of Statistics and Programme Implementation (MoSPI). The MoU provides for setting-up of “ICSSR Data Service: Social Science Data Repository” and host NSS and ASI datasets generated by MoSPI. Under the initiative, social science research institutes, NGOs, individuals and others dealing with social science research are also being approached to deposit / provide their research datasets for hosting into the repository of ICSSR Data Service. The ICSSR Data Service includes social science and statistical datasets of various national-level surveys on debt & investment, domestic tourism, enterprise survey, employment and unemployment, housing condition, household consumer expenditure, health care, etc., into its repository. ICSSR Data Service aims to facilitate data sharing, preservation, accessibility and reuse of social science research data collected from entire social science community in India & abroad. The Information and Library Network (INFLIBNET) Centre, Gandhinagar has been assigned the task of setting-up the data repository.

ARS

Antibiotika-Resistenz-Surveillance

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With ARS - Antimicrobial Resistance Surveillance in Germany - the infrastructure for a nationwide surveillance of antimicrobial resistance has been established, which covers both the inpatient medical care and the ambulatory care sector. This is intended to reliable data on the epidemiology of antimicrobial resistance in Germany and differential statements provided by structural features of the health care and by region are possible. ARS is designed as a laboratory-based surveillance system for continuous collection of resistance data from routine for the full range of clinically relevant bacterial pathogens. Project participants and thus data suppliers are laboratories that analyze samples of medical facilities and doctors' offices microbiologically.

Data and Specimen Hub

DASH

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The Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) Data and Specimen Hub (DASH) is a centralized resource that allows researchers to share and access de-identified data from studies funded by NICHD. DASH also serves as a portal for requesting biospecimens from selected DASH studies.

Public Health Ontario Open Data

PHO

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PHO's data inventory lists all PHO data sets and identifies whether a data set is currently open, in the process of being opened or exempt from being released.

45 and Up Study

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More than a quarter of a million people — one in 10 NSW men and women aged over 45 — have been recruited to our 45 and Up Study, the largest ongoing study of healthy ageing in the Southern Hemisphere. The baseline information collected from all of our participants is available in the Study’s Data Book. This information, which researchers use as the basis for their analyses, contains information on key variables such as height, weight, smoking status, family history of disease and levels of physical activity. By following such a large group of people over the long term, we are developing a world-class research resource that can be used to boost our understanding of how Australians are ageing. This will answer important health and quality-of-life questions and help manage and prevent illness through improved knowledge of conditions such as cancer, heart disease, depression, obesity and diabetes.

The Health Improvement Network

THIN

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THIN is a medical data collection scheme that collects anonymised patient data from its members through the healthcare software Vision. The UK Primary Care database contains longitudinal patient records for approximately 6% of the UK Population. The anonymised data collection, which goes back to 1994, is nationally representative of the UK population.

BORN Ontario

Better Outcomes Registry & Network

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The Better Outcomes Registry & Network (BORN) is Ontario's prescribed perinatal, newborn and child registry with the role of facilitating quality care for families across the province. BORN collects, interprets, shares and rigorously protects high-quality data essential to making Ontario the safest place in the world to have a baby.

TB Portals

Tuberculosis data science

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NIAID’s TB Portals Program is a multi-national collaboration for TB data sharing and analysis to advance TB research. As a global consortium of clinicians, scientists, and IT professionals from 40 sites in 16 countries throughout eastern Europe, Asia, and sub-Saharan Africa, the TB Portals Program is a web-based, open-access repository of multi-domain TB data and tools for its analysis. Researchers can find linked socioeconomic/geographic, clinical, laboratory, radiological, and genomic data from over 7,500 international published TB patient cases with an emphasis on drug-resistant tuberculosis.

CancerModels.Org

formerly; Patients-derived tumor xenograft finder

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Patients-derived tumor xenograft (PDX) mouse models are an important oncology research platform to study tumor evolution, drug response and personalised medicine approaches. We have expanded to organoids and cell lines and are now called CancerModels.Org

Prospered Project

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Policy-relevant observational studies for population health equity and responsible development. High-quality statistical information adult and children's health from the UN's Demographic and Health Surveys (DHS) program and UNICEF's Multiple Indicator Cluster Surveys (MICS). These datasets contain longitudinal information dating back to 1995 or 1999 for a series of social policies in up to 193 UN countries. DHS data variables include fertility, family planning and nutritional status for women aged 15-49 and young children, as well as demographic information on household structure, employment, education, wealth, and place of residence. MICS data includes information on nutritional status and child mortality, medical care during the antenatal and postnatal periods, and sibling maternal mortality, among others.

MIDAS

Nacionalinis atviros prieigos mokslinių tyrimų duomenų archyvas

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MIDAS is a national research data repository. The aim of MIDAS is to collect, process, store and analyse research data and other relevant information in all fields of knowledge, enabling free, easy and convenient access to the data via the Internet. MIDAS provides services for registered and unregistered users: students, listeners, academics, researchers, scientists, research administrators, other actors of the research and studies ecosystem, and all individuals interested in research data. MIDAS consists of the MIDAS portal and MIDAS user account. The MIDAS portal is a public space accessible to anyone interested in discovering and viewing published research Data and their metadata, whereas MIDAS user account is available to registered users only. MIDAS is managed by Vilnius University.

Infectious Diseases Data Observatory

IDDO

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The Infectious Diseases Data Observatory (IDDO) assembles clinical, laboratory and epidemiological data on a collaborative platform to be shared with the research and humanitarian communities. The data are analysed to generate reliable evidence and innovative resources that enable research-driven responses to the major challenges of emerging and neglected infections. Access is available to individual patient data held for malaria and Ebola virus disease. Resources for visceral leishmaniasis, schistosomiasis and soil transmitted helminths, Chagas disease and COVID-19 are under development. IDDO contains the following repositories : COVID-19 Data Platform, Chagas Data Platform, Schistosomiasis & Soil Transmitted Helminths Data Platform, Visceral Leishmaniasis Data Platform, Ebola Data Platform, WorldWide Antimalarial Resistance Network (WWARN)

OCTOPUS database

An open cosmogenic isotope and luminescence database

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OCTOPUS is an Open Geospatial Consortium (OGC) compliant web-enabled database that allows users to visualise, query, and download cosmogenic 10Be and 26Al, luminescence, and radiocarbon ages and denudation rates associated with erosional landscapes, Quaternary depositional landforms and archaeological records, along with associated geospatial (vector and raster) data layers.

Huygens ING

Huygens Instituut voor Nederlandse Geschiedenis

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By stimulating inspiring research and producing innovative tools, Huygens ING intends to open up old and inaccessible sources, and to understand them better. Huygens ING’s focus is on Digital Humanities, History, History of Science, and Textual Scholarship. Huygens ING pursues research in the fields of History, Literary Studies, the History of Science and Digital Humanities. Huygens ING aims to publish digital sources and data responsibly and with care. Innovative tools are made as widely available as possible. We strive to share the available knowledge at the institute with both academic peers and the wider public.

German Central Health Study Hub

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The German Central Health Study Hub is a platform that serves two different kinds of users. First, it allows scientists and data holding organizations (data producers) to publish their project characteristics, documents and data related to their research endeavour in a FAIR manner. Obviously, patient-level data cannot be shared publicly, however, metadata describing the patient-level data along with information about data access can be shared via the platform (preservation description information). The other kind of user is a scientist or researcher (data consumer) that likes to find information about past and ongoing studies and is interested in reusing existing patient-level data for their project. To summarize, the platforms connect data providers with data consumers in the domain of clinical, public health and epidemiologic health research to foster reuse. The platform aggregates and harmonizes information already entered in various public repositories such as DRKS, clinicaltrials.gov, WHO ICTRP to provide a holistic view of the German research landscape in the aforementioned research areas. In addition, data stewards actively collect available information from (public) resources such as websites that cannot be automatically integrated. The service started during the COVID-19 pandemic.