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THIN is a medical data collection scheme that collects anonymised patient data from its members through the healthcare software Vision. The UK Primary Care database contains longitudinal patient records for approximately 6% of the UK Population. The anonymised data collection, which goes back to 1994, is nationally representative of the UK population.
Country
The ZBW Digital Long-Term Archive is a dark archive whose sole purpose is to guarantee the long term availability of the objects stored in it. The storage for the ZBW’s digital objects and their representation platforms is maintained by the ZBW division IT-Infrastructures and is not part of the tasks of the group Digital Preservation. The content that the ZBW provides is accessible via special representation platforms. The special representation platforms are: EconStor: an open access publication server for literature on business and economics. ZBW DIGITAL ARCHIVE: it contains born digital material from the domains of business and economics. The content of this archive is accessible in open access via EconBiz, the subject portal for business and economics of the ZBW. National and Alliance Licenses: the ZBW negotiates and curates licenses for electronic products on a national level. This is processed under the framework of the German Research Foundation as well as the Alliance of Science Associations, partly with third party funding, partly solely funded by the ZBW. A part of these electronic products is already hosted by the ZBW and counts among the items that are preserved in the digital archive. 20th Century Press Archive: a portal with access to archival material consisting of press clippings from newspapers covering the time period from the beginning of the 20th century to the year 1949.
Country
>>>!!!<<< The repository is no longer available. >>>!!!<<< Indian Genetic Disease Database (IGDD) is an initiative of CSIR Indian Institute of Chemical Biology. It is supported by Council of Scientific and Industrial Research (CSIR) and Department of Biotechnology (DBT) of India. The Indian people represent one-sixth of the world population and consists of a ethnically, geographically, and genetically diverse population. In some communities the ratio of genetic disorder is relatively high due to consanguineous marriage practiced in the community. This database has been created to keep track of mutations in the causal genes for genetic diseases common in India and help the physicians, geneticists, and other professionals retrieve and use the information for the benefit of the public. The database includes scientific information about these genetic diseases and disabilities, but also statistical information about these diseases in today's society. Data is categorized by body part affected and then by title of the disease.